At Wits End
When I was really young, I got a batch of vaccines, got really sick (almost died) from that point on I started to wet the bed. I wetting the bed after going to sleep clinics trying all sorts of methods and didn't really outgrow it until puberty. I had a hard time sleeping. After puberty in my 20's Restless legs started to appear. Mainly in the summers for some reason. It came and went rarely but as I got near my 50's it became worse. It would come and go but it has been here to stay now for the past few years. I would test different changes in my life to see what my diet was at the time it would go away for weeks. It was so hit and miss I was unable to pin down exactly what would make it go away. Until it never went away. Now I'm like you who manages to get 2-3 hours of sleep a night. I can't continue like this for much longer. Here is a list of things I've tried over the years. If you have anything else to try and add.. I'm willing to try it. I know Opiods work because I had some when I was severely injured and it would cure it instantly but I didn't want any. I refuse and I will leave it as my last resort. Problem is I'm getting there. The antiparkinsons drugs would work but I'd wake up with augmentation at 4am worse than I'd regularly have. So if you have anything to add to this list! Please do! I'll give it a try!
Supplements
Multivitamins (daily)
All B variants
C (high doses)
Magnesium (4 different types)
Taurine
Choline
Iron Liquid / Pills
Quinine / Tonic Water
Omega 3.6.9
Melatonin
Magnesium sprays
Gaba
(many others I can't remember)
Homeopathic
Arsenicum album
Rhus toxicodendron
Zincum metallicum
Aconitum napellus
Causticum
Ignatia
Sulphur
Neurexan (sometimes helped)
Traumeel
Arnica
10 different
Pharma
Requip
Anti Parkinsons Drugs (forget names)
Gabapentin
Muscle relaxants
Anti Inflammatory
Codine
Sleeping Pills (Various over the years)
Lifestyle changes
Exercise
Walk before bed
Bath/shower before bed
Heating pads,
Tens machines
Massage Chair
Ice Packs on Head/knee etc.
No screens / mobile / books
Breathing exercises
Relaxation techniques
Diet Changes
No Dairy
More iron based foods
Limit Caffeine
Limit screen time (darkness)
Different types of teas
Ginger
Chai
Camomile
Night time type teas
Parasite cleanse
High fiber cleanses
Woo
Socks
Bar of soap in sheets / pillowcase
Meditation
Binaural Beats / brain entrainment
Awkward positions to sleep
Chiro
Cold Laser Therapy
Acupressure
Tapping (EFT)
Two things I noticed that weren't on your list: CBD (with or without THC, if it's legal in your area), and sexual activity. Also, did you experiment with a gluten free diet? I have no experience in this, but everyone is different and you could get lucky. Your mileage may vary, of course, just wanted to contribute what I could.
Glad to have you here with us! -Melissa, team memberYikes $7500 USD. As a Canadian even with insurance there is no way a regular person could afford it.
Hi
. I didn't realize you were in Canada. In the US, if insurance covers it, it might be afforable depending on the person's plan. Have you considered looking for clinical trials? There might be other devices under development that can help. - Lori (Team Member) I should inquire with them to see. I may. Though this product seems like just a glorified TENS machine which I have. I'd be interested in learning more though and to fork out that much it would need to have a money back guarantee! Though I'm so desperate if I had the money I'd spend it.
OOOhhh thanks! Much appreciated I'll start my research. I've read of even brain surgery for parkinsons that stimulate the dopamine production for people. I'm not that severe obviously but there also have been development in identifying the genome that may be involved. It is all different for people for sure. The maddening part is that sometimes it goes away and I try and figure out why and how!
Hi
. My heart goes out to you. You really have tried out just about everything. Another member posted about this new FDA-approved device a while back: https://nidrarls.com/. I'm not sure whether insurance covers it or how expensive it is, but the clinical trials seem promising. Please don't stop trying to find relief. People here have found relief in strange and accidental ways, like by rubbing charcol-peppermint toothpaste into the legs or applying pressure to pain point. Every journey with RLS is different and we still don't know the cause. There might even be multiple causes. I hope others here offer some unique and safe alternative treatments you haven't tried yet that help. Thinking of you. - Lori (Team Member)
