Feeling Cursed
Throughout my connections with several RLS Forums on Social Media Platforms the one common thread which screams out is the frustration, sadness & curse that living, & trying to somehow cope with the Chameleon that this syndrome really is, makes us ALL feel as though our lives have been cursed at some time or other.
We do our best to enjoy a quality of life, through either being sleep deprived, depressed & anxious. We dodge around extremely strong & addictive drugs, trying to find a happy medium but I'm not sure that there is one. When we mention 'Quality of Life', we attempt to remind ourselves that there are many others much worse off than us, don't we?
Despite all of this, it's always about US. We are the most important person in our world & we are our best doctor.
I shudder to think of what Oxycodone & Pregabalin are doing to my organs but in reality, when others tell us to look at the positives, to go out & enjoy the fresh air & sunshine, it's a darned awful struggle at times to do any of this. Well, I commend you all for listening to me waffle but we need to put it out their. Regards Kaye
Hi
One important reason we are here is to give you a safe place to vent among people who get it. So, I am glad you posted this. Sometimes it helps to know others are worse off, but it's also okay to scream at the universe now and then and demand to know why you are not better off. If you want more for yourself, you are more likely to advocate for yourself and seek out better treatment. That can lead to an improved quality of life. They key, as always, is balance. I hope someday you are able to come off oxycodone and pregabalin and that you suffer no long-term effects. Research is always underway and breakthroughs can happen any time. You never know what the future might hold. Wishing you the best. - Lori (Team Member) The RLS roller coaster ride. Just about the time I think I have things sorted out with my RLS meds, I get hit with the reality that this is a lifelong condition that takes constant monitoring and tweaking. Even a tiny twinge on one leg will make me stop to consider if it is going to turn into a long, sleepless night. Trying to stay positive is very difficult no matter all the supports I surround myself with. But then I do remember how fortunate I am and how much more difficulty others are struggling with. This site certainly offers encouragement and hope,
