How did your rls start, how do you deal with sleep lots

Hi, my restless legs started during the second covid lockdown. In 4 nights I went from having no issue to not sleeping at all. I have hydrocephalus, and it is one of several conditions I have developed as a result of that (rls is very common in people of have had neurosurgery, and hydrocephalus).

By the 4th night I only slept for 10-15 minutes, and that was in two short blocks after walks around my estate.

It took about 6 months for me to reach 2mg of ropinirole, but since then it's mostly worked. I sleep rather less than i used to. Also, i often wake, and then it takes hours to go back to sleep. If been on the medication for about 2 years, when it started making me vomit each night. This is perhaps the medication I have had to worry about most, I'm on my this kind of anti nausia, and I'm just hoping this one works for one (otherwise I'm fearful I'll run out of new options at some point).

As with others, I worry about augmentation, but without the ropinirole, I don't really sleep at all, so I'll have to worry about that when it becomes an issue.

I am struggling to cope with it, particularly, always being tired (can't catch up, as i can't take more medication in the afternoon). The idea of having it this bad for the rest of my life is rather depressing. During a period of being awake last night, I did one of the questionnaires which quantities it (i forget it's name) - apparently im in the very severe category, but given it is an issue every night, and often during the day, that shouldn't be a surprise. Still it's encouraging, that i do have it quite bad, I'm not just being pathetic.

It is hard with family having no idea what it is like.

I'd love to hear some coping mechanisms, see if there is anything that has not occurred (I think I do everything obvious). Also just heading from other people will be encouraging to not feel completely alone. I have hope that better treatments, perhaps like neuralink might come along, what do other think