Is it Pain?
My experience with RLS has been broad and deep, many of these personally shared on this forum. I am so grateful for this community of fellow sufferers. Having a community makes the condition tolerable. In the deep night hours, I have experienced unfathomable loneliness. Being able to bounce experiences off others helps mitigate the … Here is where I stall. I laughed with the adaptation of Silent Night. And I breathed a sigh of relief when the author referred to her pain. Explaining my condition’ is difficult. Several times while in hospital, I have dealt with nurses that just don’t get it. I’ve writhed on the hospital bed, unable to walk, and begging for medication. Inevitably someone will watch me trapped and in agony, then ask. “Is it pain or just restlessness ?”
Hi
. I am glad you find the support of this community and the connections you've made here so helpful. It's people like you who make this community the welcoming place that it is. RLS is so misunderstood. I can't imagine enduring that kind of pain in a hospital setting and still being unable to get the help you need. I hope people share the articles they find here and help raise awareness so that, someday, your experience is a thing of the past. I wonder if, for future stays, your RLS doctor would be willing to communicate with the hospital staff to let them know what you need. I miss the days when the doctor who treated you at the office also did hospital rounds. Wishing you the best. - Lori (Team Member)
