Is it Pain?
My experience with RLS has been broad and deep, many of these personally shared on this forum. I am so grateful for this community of fellow sufferers. Having a community makes the condition tolerable. In the deep night hours, I have experienced unfathomable loneliness. Being able to bounce experiences off others helps mitigate the … Here is where I stall. I laughed with the adaptation of Silent Night. And I breathed a sigh of relief when the author referred to her pain. Explaining my condition’ is difficult. Several times while in hospital, I have dealt with nurses that just don’t get it. I’ve writhed on the hospital bed, unable to walk, and begging for medication. Inevitably someone will watch me trapped and in agony, then ask. “Is it pain or just restlessness ?”
Look up "Toilet Knees". I was diagnosed with RLS 30 years ago and I always doubted my neurologist. Somehow I found this article and I believe I have a form of this crazy thing.
I'm convinced that doctors do not know very much about RLS and quickly diagnose drugs when there are other options.
It's worth discussing with your,
. Maybe you can at least get a referral to physical therapy. Have you switched to higher toilets in your home? All three of my boys and my husband are 6-foot-5, so we have always had high toilets. I don't know how I ever put up with standard toilets in my younger days. They seem so ergonomically wrong. Best wishes. - Lori (Team Member)
Hi
. I am glad you find the support of this community and the connections you've made here so helpful. It's people like you who make this community the welcoming place that it is. RLS is so misunderstood. I can't imagine enduring that kind of pain in a hospital setting and still being unable to get the help you need. I hope people share the articles they find here and help raise awareness so that, someday, your experience is a thing of the past. I wonder if, for future stays, your RLS doctor would be willing to communicate with the hospital staff to let them know what you need. I miss the days when the doctor who treated you at the office also did hospital rounds. Wishing you the best. - Lori (Team Member)
