RLS DICTATES MY LIFE
hello I'm 52 RLS is my shadow it dictates my world ,this is really hard to write as I don't know the words to explain , I have the inherent RLS my mam and nearly all her sisters suffer with it if varying degrees I have it severely , i live alone thankfully so I don't have to explain to anyone why I have to keep moving why I feel so desperate at times I end up smashing a hammer into my legs to make them hurt for a different reason to make my mind go to a another pain ,RLS is my enemy that comes every night I'm past crying I'd love to be able to just lie down and sleep , I don't know what that would feel like? RLS is my life it effects everything every aspect of my life , I have medication sometimes it works sometimes not I'm so tired of it really really tired.
Hi CommunityMemberffec24, 53 year old female here who has suffered with RLS for as long as I can remember. Recently took the bold step of quitting Citalopram (antidepressant) and my RLS became so severe that I was barely getting an hour’s sleep each night. Like you I literally wanted to saw my own legs off. As suggested by Lori I scrolled and researched and tried a number of things and hit on the use of L-Tyrosine, an amino acid supplement. It has been an epiphany! I take one each morning (not at night in case of energising properties) and I am ecstatic to say my RLS has GONE! No idea how or why it works for me but it just does. Maybe worth a try for you? Hang in there, you WILL find something that helps - persistence is key x
I weaned over 6 weeks. It was tough - especially the insomnia and extreme RLS - but I appear to have made it through to the other side! L-Tyrosine still working for me 45 days on … 🤞 
Awesome. Really glad to hear that. Weaning takes so much patience, especially when there's not much you can do other than let your body adjust and hope for the best. Wishing you more success ahead! -Melissa, rls team
You really sound like you are struggling,
. I would imagine it's even harder when so many other family members suffer with it and have found no relief. Do you feel like your doctor is doing everything possible to help you or might it help to find someone new? Even if you did inherit RLS, that doesn't mean treatments will effect you in the same way as your other family members. There might be treatments that didn't work for them, but will help you. I know you are mentally and physically exhausted, but I hope you continue to advocate for yourself until you find something that brings relief. If you read through some of the forums, stories and comments on posts in this community, you will see that many people have found relief in the strangest ways. For instance, peppermint and charcoal toothpaste rubbed on the legs helped one person. Another person puts pressure on pain points and gets relief every time. Maybe you will also find something that helps. You deserve to be healthy and happy, so please keep trying even when you have to dig deep for the energy to do so. We are here for you. Warmest of wishes. - Lori (Team Member)
