It's now 2025. In 2002 I had an answer to my mood changes, sleep difficulty, anxiety, etc... I studied RLS and everything I could learn about the monster within me. After ten years I sat dilligently at the computer and wrote a book. Not another medical book about RLS, but an honest story of how it affects us, what we can do to ease the symptoms, etc. Since publishing that book in 2017 I have sold four hundred copies world wide & given sufferers information that many doctors and websites failed to address. Now I have eight copies left. Most doctors in my city of Albany in Western Australia have copies. I have given talks to a group of eleven doctors this year and I was able to answer most of their non- medical questions. My doctor of twenty two years is now the most knowledgable practitioner about RLS here, because I have passed on all current research papers and relivant documentation. I still feel that there is more I could have done though, because medications and new research brings forth current news. I have been to hell and back so many times that have resulted in the way I am today. Been there, done that, as the saying goes. I do feel proud that people have found my book to be helpful and that some people have even requested that I meet with them locally, which I have done. We are all of those creatures floating in one big boat, forever hoping for a destination and a reprieve from the dayly and nightly trauma of RLS. We are trying inevitably to find that fragile wiring in our brains. To find a technition who knows how to fix it.
There is hope, but now, about to turn 74, it won't be in my lifetime. I have to console myself to the reality of staying on Opioids and Alpha 2 deelt ligands such as Pregabalin.