Managing RLS through the holiday season
How do you manage your RLS symptoms during the holidays? Do you have food/drink triggers? Does the stress of the busy season make your RLS worse?
Some people with RLS find that their legs are less active in colder weather! Has anyone else experienced this, or does the winter cold worsen your symptoms?
Also not even a medical novice here, aside from my own diagnoses lol. For me, anything that has anything even to do with 'sleepy' makes my RLS go absolutely @pe$h!t. I can't take anything labeled PM and always have to tell a new prescriber "no benzos please". My trigger is feeling sleepy, which I can only attribute to melatonin (since I can get up and walk around and it goes away, so long as I'm not actively trying to rest). Even passing out due to exhaustion or imbibement will have me awake 30 minutes later with my legs going nuts. 
That has to be maddening,
. I hope you find something that brings you relief soon. Thinking of you. - Lori (Team Member)
My Pharmacist said that when you introduce something to your body it releases an enzyme to determine what it is going to do with it....Doctor put on Lyrica on 12/5 and it seemed to work then I took a big dive....Pharmacist said could last two weeks.
Hi
. Did your doctor put you on Lyrica to address your RLS or did Lyrica trigger your RLS? Lyrica is sometimes prescribed for nerve pain, but it is not often used for the movement issues of RLS. - Lori (Team Member)
Hi Lori, I'm currently on ropinerole, same drug class as pramipexole. I switched from that because they had me at the highest dose twice daily and wanted to see if the slight difference helps. They also prescribed extended release, which Does Not Work (unless i chew them 🤢), so I'll try the standard tablets next. We already know gabapentin doesn't work for me, that was actually the first attempt. It's been a ride lol.
Hi
. I hope the standard tablets help. Keep us posted if you don't mind. I'll be thinking of you. - Lori (Team Member)
My RLS is triggered by melatonin. I'd literally kill someone for preventable symptoms.
Hi Astarael. Thank you for sharing 🤗. I found your reference to Melatonin interesting. I’ve been suffering from RLS for more years than I can remember. Originally it wasn’t every nite, now it is and I’m averaging 4 hours sleep out of every 48. Just last week my GP prescribed Melatonin, and I’ve not found any relief so far. One thing tho, it’s SO expensive. AU$160 30 tablets. Five + dollars a day. Unfortunately I don’t get any relief.
I’d be interested to know, and perhaps Astarael would too, anyone else’s reaction to Melatonin. The chemistry of this product is indicative of being a med’ that should help us without being a narcotic or even a sleeping agent.
I recently saw a sketch of a small bottle. The label read. Dose, Eight Hours Sleep!!
I wish🧐.
Thank you for your time and I look forward to hearing your comments.
My sincerest regards to you all.
Max OD
Darwin Australia.Hi
. We are not medical experts, but my two youngest have used melatonin for years and I use it sometimes as well. In my experience, if it doesn't help initially, it won't help at all. Melatonin is simply a synthetic form of the hormone your body naturally produces that signals sleep. It helps some people fall asleep, but it doesn't keep them asleep. It works for my kids (who are nearly adults now) because they are big-time thinkers. They often have trouble shutting down, but once they are asleep, they sleep well. It will not help your body to ignore pain though. I hope that helps and that others chime in with their own experiences. Warmly, Lori (Team Member)
