Hi me again thank you for the people who replied. I am really concerned about my musle twiching, google is the worst place to go ALS comes up first but then if you put a lump then cancer comes up so I'm trying now to be too concerned, however suffering wirh anxiety it's extremely hard. I've had rls for about 6, maybe 7 years now, so I'm not concerned that's anything other than rls. I am, however, on ropinale which has been a god send however the dose has gone up and up and now I'm on 2ml of which my neurological doctor said its the max dose. I have asked for an alternative and was told thar nothing other than ropinirole works and can be prescribed? Which I find strange as I've read of others. About 6 months ago I started getting muscle twitching in my calves, you can actually see the skin moving and flexing, not nice, not painful but a weird sensation. I was then told it was anxiety of which I do suffer with and prescribed fluxitine and was told don't worry it will settle. Nope still got them although not as anxious. So when I get them the muscle moves, twitches, it's not painful. I've even had them in my thighs recently. I'm not sleeping well, insomnia so could be related. Finally the neurological doctor has arranged for a nerve electric test after me sending lots of begging emails for an answer. In a way I think well he's not concerned so I'm OK or he's just a rubbish doctor. So I'm thinking, it's the ropinirole? My question to you lovely people is
1 anyone had sode effect like muscle twiching after taking this for many years.
2. Or anyone just developed them with thier rls
3. Could it be lack of sleep
I know you are all not doctors but I'm just reaching out to see if this is just another part of rls, I've read it can be I've also read ropinirole can cause it after long term use.
What I don't get is the doctor not swapping me for an alternative drug to rule it out?
I'm trying acupunture today, I really am praying it's one of the above and nothing nasty.
I'm totally besides myself and although I need to know I don't at the same time.
I dont have issues with tripping , lounge etc which can be part of ASL, thing is there are so many things it could be unfortunately Google is doctor death.
Any advise or stories shared would be good to hear, not bad ones please as I'm on the brink as it is.x