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At a loss with RLS...

Been putting this off a long time, hoping it would doesn't.
I stay up so.late and only sleep when I am absolutely exhausted and get a couple hours...mostly sitting up because I am unable to lay down...I have scratched myself to bleeding with the pain and's crazy.
I have not told my Dr...frankly I dunno if they will believe me.

  1. Hi Lori, met with Dr today and we are doing some tests to rule out some vitamin deficiency. Mentioned Ropinirole as a possible med for relief. Any experience with that?
    Will let you know how it works out.

    1. update...I'm off the ropinirole...although it gave me 80/90% temporary relief, it gives me even more insomnia..I'd sleep solid 3-4 hours then up for the rest of the day/night or whatever. Starting a pramipexole..very similar drug. The transition is not going well as I'm up and irritated,itchy, anxious and needless to say frustrated.

    2. I hope your experience with pramipexole improves over time, Did the itchiness subside with the ropinirole? There are so many other medications, supplements and alternative treatments you can try if this medications doesn't help. Here is an article that discusses them: Don't ever give up. There are likely multiple causes of RLS, which means that there might be very different solutions for different people. I appreciate the update. Keep me posted if you don't mind. Fingers crossed for you! -Lori (Team Member)

  2. Hi . I see you are new here. Welcome to the communuty! As you can see from 's response, we have some very supportive people here. Please don't be afraid to talk with your doctor. Most doctors are familiar with restless leg syndrome. Your doctor might run some tests to rule other health conditions out. Your primary care doctor might treat you, though you would likely benefit from seeing a neurologist as well. Here is an article about the diagnostic process: Here is an article about treatment, including links to alternative treatments you can try while you are waiting for a diagnosis: I hope this helos and that you get a good night's sleep soon. Keep us posted if you don't mind. I will be thinking of you. - Lori (Team Member)

    1. Brian, I understand your frustration. Over the years I have been able to find relief for my RLS for a few weeks then suddenly nothing works or a new reaction pops up. Recently, it was intense itching. This went on for several weeks almost every night. Finally I tried MagniLife Relaxing Leg Cream PM which has signifcantly reduced the itching to the point that I don't have to use it every night. I feel fortunate that I have been in a good place with my RLS for a couple of weeks now but have learned that I always need to remember that at any time a new issue may develop. One difficulty is that at age 75 I have other health issues and what helps with those may trigger my RLS. It is an ongoing puzzle that exhausts the attempt to find solutions. I hope you can find some relife. BarnGir1

      1. Thanks, Lori. I have been doing well enough that I have not needed the pressure balls yet but they were inexpensive so now I have then when I need to try something new for relief. I recently read an article about sleep apnea and RLS but it was a similar % relationship as that of migraine and RLS. Helpful info but no new treatment specifically for those combined issues. I gave up on apnea masks but learned a lot from my test results. My mouth guard seems to be doing the job. Thanks for your support.

      2. That's great news, . I am glad you went ahead and bought the pressure balls. That way, you'll have them on hand should you ever need them. How awesome that the mouth guard works for you. Not everyone benefits from them. It's probably far more comfortable than a mask. Thanks for the update! - Lori (Team Member)

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