Can you describe the "irresistible movements"?
Hi,
Sorry, I already asked this as part of the other thread I created (about ibuprofen), but I think it did not get much notice in there since it was not the main subject. I am really trying hard to understand the RLS movements people are experiencing. Everywhere I read, it keeps saying "irresistible urge to move legs", but no description on what these moves look like? Are we talking about jerking, twitching etc, or can it be very subtle like stretching and rubbing? Also, can you have RLS but not have the irresistible urge to move legs or is it pretty much given if you have RLS?
I am still trying to figure out my condition.
Sorry for the double thread and thank you.
Thank you so much for the reply.
I am starting to think maybe what I have is not rls?
I really wish there was a definitive way to test this. I had a sleep study done about 10 years ago. It showed moderate plmd, but did not look at RLS.
Either way it is a very very frustrating condition as it really disturbs my sleep, that's why I am trying hard to get to the bottom of it..it's been acting up a lot lately and no idea why. Sometimes it's all good for weeks or months, but these days it is every single day!
Thank you.
The interesting thing is sometimes there is no movement at all! When they diagnosed my restless legs I told the doctor there was no way that was it - I slept dead still. But inside my body was going wild! I described it as my insides wanting to get outside. As the doctor described to me, that feeling was my muscles wanting to fire and my body not allowing it.
It’s an interesting condition. It may look different for everyone and also may be caused by different things. That’s why one treatment does not work for all. I can’t stress enough to find a health provider who listens to you well. Typically finding a solution is a process and you need to work with them to get you to a place where it can be controlled.
Keep in touch as you go through this process. It took me over 20 years to get diagnosed and probably another 10 to find the drug that worked for me. I don’t want you to experience the same!
Kim (Team Member)
Hi
I have suffered from RLS for the last 12 years, for me, the feelings in my legs can change depending on how intense the RLS attack is.
If it is a ‘normal’ attack that I experience everyday then it feels like, when you have pins and needles then stand up, when your legs start to come back to life you get that creepiness in your legs.
When I’m in the midst of a ‘major’ attack then it is a jerking sensation, especially if I try to ignore it. It can be quite frustrating, as there seems nothing that can be done to alleviate it.
With regard to leg rubbing, this is something I do a lot, having been told that it is a ‘soothing’ action. If you find yourself stressed, bored, and you start rubbing your legs together it is likely to be a soothing action for you.
Nikki 😊
