Tell us about your symptom and treatment experience. Take our survey here.
Bwatson
Last Updated:
Does anyone experience their feet getting cold when the RLS starts? I have had RLS for about 15 years and this just started about 6 months ago. If I put my feet under a heating pad it helps.
PatD Member
Last Updated:
When I first started getting it, my feet and hands got hot and I would often sleep with my feet out of the covers.now I can’t get my feet warm. Not sure if it is the RLS.
Ray Li Member
Last Updated:
🥄🦄 Ray (Team member)
Ray Li Member
Last Updated:
"In the 1940s and 1950s, Ekbom remarked that RLS symptoms commonly cooccur with complaints of cold feet, which he hypothesized shared a common pathophysiology in vasoconstriction given his experience that vasodilatory agents brought relief" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2675893/#B12
🥄🦄 Ray (Team member)
Chief Member
Last Updated:
I'm 70 and have had RLS for at least 15 years; maybe longer; that was when I first determined that the discomfort I was experiencing was not normal. Cold feet, particularly the toes, was first. I noticed it at bed time, resulting with difficulty in falling asleep. The same feeling would at times crop up when I was doing desk work, prompting a stroll for relief. Even with pramipexole doing a fair job of muting full blown RLS symptions, I still feel a need to keep my feet/toes covered, including wearing socks to bed, regardless of the ambient temperature. In fact, as I am writing this my toes on my left foot have a mild cold sensation, even though my legs are currently symption free. I can't say this cold feeling is defiantly RLS, as it doesn't always manifest along with common RLS symptions,
Allison Echols Community Admin
Last Updated:
Hi
Ray Li Member
Last Updated:
You really have me wracking my brain trying to recall if my feel have ever gotten cold when my RLS starts acting up. This is a good question.
....
I have issues with my feet getting cold but I honestly can't recall if it happens when my RLS starts to act up. I'll try to pay attention over the next couple of days to see if I notice that happening or not.
Everyone experiences RLS differently so you may be in a unique situation that not many experience. I don't know. Have you been able to bring this up with your doctor since it started?
🥄🦄 Ray (Team member)
Bwatson Member
Last Updated:
Ray Li Member
Last Updated:
Good luck with your doctor. If you feel comfortable, can you update us afterwards?
🥄🦄Ray (Team member)