This awful condition runs through my family like an unwanted present. My dad bless him had it all of his life, 87 when he died and he was largely ignored by doctors never had any meds. My older brother and sister both have and do suffer, strangly both have undergone spinal stenosis operations. I also have spinal stenosis, having spoken to many medical practitioners they never seem to show a hmmmm! moment.
I have lived with RLS for over forty years. The last eight on ropinerole and more recently Gabapentin.
As you probably all know a growing intolerance to prolonged meds. Great when they work , but the rebound.
People cannot comprehend how it takes over you. Indeed my poor old dad would sit in his chair after work absolutely worn out and off they would go. My then girlfriend almost burst out laughing when he did his exaggerated double legs swop ala Kenny Everett impression.
You ain't laughing now thirty years of disturbed sleep later, thanks for your patience Teresa.
I am luckily the type of guy who just gets on with it and like many others have developed many ways of coping.
I strongly believe that I am a stronger person for having this condition, having worked as a carer in the community with people who had MS or Parkinsons so I do know a tic from a spasm. But it really annoys me when my health having taken such a nosedive in the last five years. Conditions combined to causing my premature retirement I strongly feel have been underpinned by my constant personal battle with RLS. All of them I get a huge choice of drugs therapies and treatments. But hardly any input towards the single most invasive thing in my life. It's the cruel way that it shows up when I'm trying to rest, meaning sleep is taken as and when I can. You know when you are with the doctor again saying how low and tired you feel, though no thoughts of self harm. Yet there are times at 3.45 a.m. again when you might whisper oh please not again.
Sorry this is a ramble isn't it but I've only just found you and feel like I'm out of solitary.
I would like to hear how you cope , wishing you a peaceful evening.