Mrs M OD
Has anyone been admitted to an ED and after several days, no one has realised your taking meds for RLS ?
There really is a withdrawal situation here and it’s a bitch!!
Whenever I’ve gone to Emergency I’ve always taken my meds.
I’m really writing so you all can be aware this could easily happen to you.
Hi
. Sadly, that's not an uncommon issue. Often, the hospital staff is unaware of the seriousness of RLS and the pain and sleeplessness it can cause. Here is a forum post from another member who has lots of issues while hospitalized: https://restlesslegssyndrome.sleep-disorders.net/forums/is-it-pain. I'm not sure what the solution is other than making family and friends aware so they can advocate for you when or if you can't. I'm glad you take your meds with you. That's a wise move. Thanks for sharing your experience. I hope it helps others. Warm wishes. - Lori (Team Member) Hi
. Since we don't really know the causes of fibromyalgia and since there are multiple potential causes for RLS, I wouldn't doubt that there is a connection for you. I hope your doctor finds something else that helps. Here is an article about medications that you can read before your appointment: https://restlesslegssyndrome.sleep-disorders.net/medications. Maybe it will help you advocate for yourself better. Here is another article about devices that can sometimes bring relief: https://restlesslegssyndrome.sleep-disorders.net/treatment/devices. Let me know how the appointment goes of you don't mind. I'll be thinking of you. - Lori (Team Member) 
Did the meds you take ever work in the past? If they aren't working anymore, I wonder if augmentation could be at play. This is a tolerance that builds to some RLS meds and it can make your symptoms worse, especially if, like in the hospital, you suddenly weren't taking anything. Here's an article that explains what it is and some strategies to consider:
https://restlesslegssyndrome.sleep-disorders.net/living/fear-augmentation
Maybe your doctor can switch you to a different medication or a different dosage. Bear in mind though that augmentation would likely flare up again at some point in the future, unfortunately.
Did you have your appointment? How did it go? -Melissa, team member
