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New member as of 6/30/24

Becoming more educated in RLS recently, I think I've had it since a young kid when I would tell my mom I had that "funny feeling" in my legs. Never thought about it much during my teens - 20s when I was very active, including two varsity sports and a ton of basketball in college.
As my activity dropped in my 30s-now, things got worse. After turning 50, things started going downhill, peaking with an international business trip to Norway where I was awake for (no lie) over 72 straight hours. I'm not sure how I ever did go to sleep on that trip, but for the past 10-15 years I've struggled, seeking help anywhere I can find it.
Pramipexol is my current crutch, where I need to take three .0125 mg tablets each evening about 4 hours before I go to bed, or I'm up all night. If I forget to take them, I wont go to sleep until about 3-5 hours after taking them. When first taking Pramipexol, I only needed 1 tablet, but as I just said I now take 3 and can tell I'm heading to 4 (which I think is the original dose). Hearing about people needing to continue to increase their RLS meds scares the bejeebers out of me as I take other meds for cholesterol and a beta-blocker for an essential tremor I have to blame on my genes (the hand tremor is all throughout my extended family on my dad's side). Fortunately, Pramipexol, Propranolol, and the cholesterol meds keep me in fairly good shape.
Some of you you may find it interesting that I also have a genetic a-fib situation, which is mostly asymptomatic, i.e. average heart rate around 60, just inconsistent beat cadence.
This means I seem to have several "electric/nerve" related issues (RLS, essential tremor, a-fib). Sometimes I wonder if I could have a Dr. zap me with a defibrillator zap me to reset everything just to see if that might do a big reset for me.
In the end, RLS is driving me out of my mind. I'm sensing it earlier in the day and need to take special measures when flying or going to any event (movie) where I'm idle. Having just retired I'm spending more time working out, but I have no expectations of that fixing or even helping the RLS situation. While I wish RLS on no one, I am thrilled to find this forum and plan to read thru as much as I can over the next week. My sympathy to all of you sharing this misery with me. Regards, - Chris I welcome any and all questions about my condition and/or suggestions.

  1. Same, same, PLMD is a real struggle. I augmented on ropinirole after using it for two years. after a six week break from drugs I have just started Lyrica. Hopefully it will result in better sleep.
    Alcohol and sugar intake worsens symptoms.
    I short walk late in the evening seems to help somewhat. Sometimes when I am lying in bed with restless legs I'll get up and walk around the block.

    1. Welcome to the community, Chris! () I'm glad you found us. Wouldn't it be nice if there was such a thing as an electrical reset treatment for RLS? You never know what the future might hold.
      It sounds like you are experiencing augmentation. Here is an article about it that might interest you: https://restlesslegssyndrome.sleep-disorders.net/augmentation. There are treatment approaches that can help. Have you talked with your doctor about the fact that you need more and more medication with time?
      Please let us know if you need anything as you navigate the community. We are here for you. Best wishes. - Lori (Team Member)

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