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Does RLS affect other parts of your body?

Aside from your legs, what other parts of your body are affected by RLS?

  1. Sometimes it’s just my legs, sometimes it’s been so bad my whole body is in the throws of an rls attack and that’s when I just get up out of bed because I know there’s no way I will sleep no matter how tired I am.

    1. I am so sorry to hear that your RLS is being so problematic and not allowing you to sleep. Have you been able to talk to your doctor about it?

      🥄🦄 Ray (Team member)

    2. Agreed, I too, sometimes just want to kick and scream about it.

      🥄🦄 Ray (Team member)

  2. Does anyone have such pain when you are riding in a car you can’t sit still or stay seated on your back side or legs?

    1. Before I had medication for RLS I struggled so badly in confined spaces like cars. The best I could manage was to do lots and lots of stretches. I used to sit on a tennis ball and use it for pressure points. It helped a little bit didn’t solve the problem altogether.


      Cheers.
      Simone (Team Member)

    2. I do. If you are interested, I wrote about my experience as a passenger in vehicles https://restlesslegssyndrome.sleep-disorders.net/living/patience-understanding-car

      I am sorry that it's really rough on you. Do you have any tricks to help things for you?

      🥄🦄 Ray (Team member)

  3. I now have it in my arms as well!

    1. I am sorry to hear that it's now in your arms. I get it there sometimes too when the RLS is really bad.

      🥄🦄 Ray (Team member)

  4. I have it in my legs, arms, and on occasion my torso. Always will start on my left side; usually arm then leg.

    1. My RLS is also primarily down the left side. I’m sorry you struggle too.


      Cheers.
      Simone (Team Member)

    2. I am sorry to hear that it can be something that your torso experiences. I can't even imagine what that must be like. Are there things that can help bring you a little relief?

      🥄🦄 Ray (Team member)

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