Why will my Doctor not discuss RLS with me
My name is William Henry I have RLS for over forty years My mother has had RLS for a very long time. I live in the UK
My Doctor won't discuss RLS with me I know I have RLS because there is a family history of RLS
My mother was only diagnosed with RLS approximately a year before she died of Lymphodemia
I belong to Health Unlocked and RLS-UK
I would love to start a conversation about why Doctors in the NHS won't discuss RLS
Thank you for your kind wishes My doctor discussed RLS with me just before Xmas
He prescribed Pramipexole. He also said he may up the dosage from 88micrograms
Best wishes
William 😀 😀
I am so glad you advocated for yourself and finally got treatment,
. I hope it brings you relief. Keep us posted if you don't mind. Warmly, Lori (Team Member)
Hi .
I was viewing your message and yes you are right some doctors do not want to know.
I myself have severe primary rls and have been so desperate.thay I Thot why won't people listen it is a neurological disorder and you alone can't stop it.people assume they have it just because they feel fidgety but that is not rls. . I really do know and understand.this is our life and yes you feel nobody is listening. don't think there will ever be a cure because it's not life threatening and I think that's the reason that doctors don't bother.I am glad you found this community so you at least know you are not alone. Gentle hugs. - Lori (Team Member)
William, I don't think many doctors or people know what RLS is. I have met several people who said they have RLS but when I told them I did also and asked them questions they just looked at me and said - Maybe I don't have RLS! I hope you can find a doctor who knows and will help you.
I am inclined to agree with you. When I started working for this site, as someone who does not have sleep disorders, I assumed I knew what RLS was. It turns out I was wrong! That's why we try to focus on education as well as support here on the sites. It benefits everyone. The trouble is when you have a doctor that doesn't understand. Sometimes, the best strategy is to work with a specialist who will communicate with your regular doctor. Thanks for chiming in. -Melissa, team member
I've tried a lot of medication but not suited me had bad effects to them. I've got appointment on 9th September at musialsketal team about my legs hopefully get some answers .I hope your well .
Hi
. I hope your appointment goes well and that you find something that is effective for you. Keep us posted if you don't mind. Best wishes. - Lori (Team Member)
