Community Health Leaders
In order to stay up to date on the latest treatments, drug discovery, clinical studies, and how to cope with restless legs syndrome every day, RestlessLegsSyndrome.Sleep-Disorders.net brings you frequent articles, points of view, and advice from health leaders and experts.
Current health leaders
Nikki Albert is a blogger at brainlessblogger.net where she blogs about living with chronic illness and chronic pain. She lives with fibromyalgia, chronic migraine, chronic vertigo, depression, restless legs syndrome and a miscellaneous amount of comorbid conditions randomly selected by genetics. Read more.
Joy Adanna Emelogu
Joy Adanna Emelogu is the founder of www.beingadanna.com and the #restlesslegsmatter creator. Her focus is teaching women to navigate life, career and motherhood while also bringing much needed awareness to RLS. Read more.
Like many in her family, Dawn has had RLS daily since childhood. When her youngest grandson started displaying symptoms seven years ago Dawn became an advocate. She knew all too well the horror going on in his little legs and what a difficult and sometimes lonely road he had ahead of him.
I live in a small village just outside the University city of Cambridge U.K. with an exceedingly grumpy rescue English Bulldog called Belle. Read more.
Laura Wheatman Hill
Laura Wheatman Hill was a restless child with restless legs who was told she needed to be less of a Gemini and commit to one task. She refused. A theatre kid by heart, she felt most at home on stage and with her theatrical peers. Read more.
My name is Lucy Hoekstra and I’m from the Netherlands. My passport says I’m 33 years old, but most of the time I feel like I’m 23, Sometimes, however, my body makes me feel like I’m 93. Read more.
Ray Li started taking interpretive dance classes when she was 8yrs old but two years later had to stop because her legs were hurting too much & her joints were becoming stiff. Her Mom said it was just growing pains so it would stop soon. Pop culture also made it seem like it was just growing pains, there was nothing that had kids with RLS. Read more.
Kim McKinney began having sleeping issues in her early 20s. Her mother had been an insomniac for as long as she remembers but chose to remain untreated and only sleep a few hours a night. Read more.
Jessica Johns Pool
Jessica Johns Pool is Senior Medical Writer for Health Union. She’s had restless legs syndrome since childhood, though she had no idea it was a recognized medical condition until her 30s. Read more.
When Simone was young, she thought she knew who she was. Now she has no idea. She spent more than three decades teaching and performing the flute before transitioning into writing and editing by completing a Masters in Journalism. She has since worked with a mentor to hone the craft of writing and has just completed her first book. Read more.
Former health leaders
Mary Blackburn is a certified pharmacy technician. She spent the majority of her career working in her community at her local pharmacy. She has two daughters, Caitlyn and Amber. Read more.
Matthew Horsnell is a person having narcolepsy with cataplexy, obstructive sleep apnea, and restless legs syndrome. He received his narcolepsy with cataplexy and restless legs syndrome diagnosis when he was 25 years old: however he has been experiencing symptoms since he was twelve. Read more.
Lindsey Kizer is living with Narcolepsy with Cataplexy, Restless Legs Syndrome, and other health conditions. Growing up even at a young age she was always the “sleepy child” and her father’s nickname for her was even “Sleeping Beauty”. Although she always remembers being sleepy, she recalls many of her other symptoms beginning during her 5th-grade year after dealing with strep throat several times and mono. Read more.
Hi my name is Aaron Nuest and I'm a Registered Polysomnographic Technologist (RPSGT). I’ve worked as a sleep technologist for over 10 years! I’ve heard several hundred stories of sleep issues. Read more.
I was officially diagnosed with a sweet little cocktail of neurological issues including Restless Leg Syndrome (RLS) in 2014. As I learned more about the disease I came to realize RLS symptoms were present in my everyday life as far back as the mid-1990’s. Read more.
Tamara Sellman, RPSGT, CCSH is a career journalist (Columbia Chicago, ’90). She was diagnosed with idiopathic hypersomnia and upper airway resistance syndrome (UARS) in 2010. Her sleep problems inspired her to go back to school to become a sleep technologist in 2012 and a professional sleep educator in 2014. Read more.
Joyce Ann Willis
My name is Joyce and I'm a retired Registered Nurse from Arkansas. I've had RLS for 55 years. My RLS began when I was 11 years old and accompanied aching legs from my growth spurt and I still remember how miserable I was even a half a century later.
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