Ropinorole augmentation - help
Hi, so grateful for this forum. I’ve had RLS since I was about 10 years old and it’s got progressively worse as I’ve got older. I’m now 44. The doctor put me on Ropinorole about 18 months ago. At first, it was brilliant, but slowly my symptoms crept back in so I kept increasing the dose. When at the max dose things suddenly took a turn for the worse and my symptoms became unbearable - this was 2 weeks ago. I have since started to wean myself off it and I’m now only taking 0.25 mg with a plan to stop it entirely next week. The doctor prescribed me pregablin (100mg) which I am taking simultaneously (as well as iron and magnesium). But my symptoms are hell on earth. I’m getting about 4 hours sleep a night and my legs are going constantly from 6pm. In this state it is very possible I could end up having a horrid accident, I keep crying and I honestly don’t know what to do. Can someone give me hope that this will improve please? I’m going to go off all the drugs as nothing seems to be working. Has anyone had similar experience please?
Hi
. My heart goes out to you. What an emotionally and physically painful situation. You are not alone and it is possible the severity of your symptoms will lessen over time or with another treatment. Since we really don't know the cause of RLS, it is important to keep an open mind and try new things. The nervous system is still a mystery to us despite all that we already know. People in this community have found relief from everything from back surgery to weighted blankets. Here is an article about RLS treatment that includes devices, supplements and lifestyle changes: https://restlesslegssyndrome.sleep-disorders.net/treatment. Hopefully, you will find something you haven't tried that at least helps. If you enter "alternative treatments" in the search box at the top left of this page, you will come up with more approaches that community members have found helpful. I hope you get some relief soon. Please keep us posted about your progress. I will be thinking of you. Gentle hugs. - Lori (Team Member)
