Sit awhile and chat.
Greetings and welcome.😁
This thread is for people to share how they are doing and it doesn't have to be related to RLS. Think of this as a form of self-care. How you doing? Having a bad day? Let us know, maybe there is a way we can help brighten your day. (Have you seen the video of the Grandma reading 'The Wonky Donkey'? You'll be laughing hard for sure)
You can also share with us pictures you have taken.
Got a song that is like an anthem to your life or how you are feeling right now? Please feel free to share it here too.
I hope that this place will feel safe enough for you to share with us. We very much appreciate each and every single one of you.
I talked to my GP about experiencing augmentation on Pramipexole and she agreed to change me over to Pregabalin. I'm tapering off right now and of course, as luck would have it, my root canal got moved to tomorrow morning. I'm nervous cause I don't want my RLS to act up and I know my Fibro is going to make the pain so much worse than it normally would be. (Yes there will be an upcoming article about switching meds and about the dentist experience)
Oh and in case I don't get on here on Halloween:
Happy Halloween!!!
🥄🦄 Ray (Team member)
Even celebrities get sick and when they are an artist, they usually incorporate it into their work.
Case and point, Ozzy Osbourne's new song 'Patient number 9'. Now I live with multiple diseases so this song is like an anthem to me, something I can relate to all too well. Now I know Ozzy might not be for everyone, I've only recently got into his music myself (keeping in mind that he is a character) so I thought I would share the lyrics here:
🎶Patient Number 9 - Ozzy Osbourne
Every hallway's painted white as the light
That will guide you to your hell
Making friends with strangers inside my mind
'Cause they seem to know me well[Pre-Chorus]
Hiding the pills inside your mouth
Swallow 'em down, then spit them out
I hear the laughter scream and shout
"No tomorrow"[Chorus]
When they call your name, bettеr run and hide
Tell you you're insanе, you believe their lies
I'm not gettin' out, no, I'm not gettin' out alive (Ooh)
I'm not gettin' out 'cause I'm patient number nine (Ooh)[Verse 2]
When the sun goes down, the animals cry
That's a sound you won't forget
It's the mirror's face you don't recognize
It'll get you in the end[Pre-Chorus]
Hiding the pills inside your mouth
Swallow 'em down, then spit them out
I hear the laughter scream and shout
"Someone help me"
You might also like
[Chorus]
When they call your name, better run and hide
Tell you you're insane, you believe their lies
I'm not gettin' out, no, I'm not gettin' out alive (Ooh)
I'm not gettin' out 'cause I'm patient number nine (Ooh)[Guitar Solo]
[Bridge]
When the walls of a padded cell become reality
How many tears till I drown myself 'cause no one cries for me?
If there's a God, why'd he let the Devil do his work on me? Oh yeah
If there's a God, what am I doing here?[Chorus]
When they call your name, better run and hide
Tell you you're insane, you believe their lies
I'm not gettin' out, no, I'm not gettin' out alive (Ooh)
I'm not gettin' out 'cause I'm patient number nine (Ooh)🎼If you want to give it a listen, here is the link
https://www.youtube.com/watch?v=CkiniZBRt3s
Music is life for me & therapy.
🥄🦄 Ray (Team member)Feeling super tired right now. For the last year I have been falling asleep between 6:00pm-7:00pm no matter how hard I try not to. It's been a hard adjustment to make.
Some Pink Floyd is playing right at this very moment while I moderate. I wasn't able to get out for a walk earlier today and my RLS is starting to act out as a result.
Hope everyone is surviving.
🥄🦄 Ray (Team member)
Happy humpday!
I'm sharing this photo I did in black and white. It's of a bee checking out a sunflower🐝
Hope everyone is hanging in there.
🥄🦄 Ray (Team member)
