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The lack of information is the worst part

I've had RLS since I was very young, it's genetic in both parents and I've been Dealing with it over 30 years now.

I am so absolutely and completely fed up with the lack of research or effort therein. I've hounded physicians for test after test, been told it's psychosomatic, circulatory, muscular cramps, nerve damage, all of which came back negative. It's past midnight and I'm having full seizures in bed, seriously contemplating how much longer I can take a few hours' cheap, unfulfilled dozing and overextended knee joints (I've thrown them out multiple times in my sleep) before I get my f***ing legs amputated and call it an overall win.

  1. Hi . I wish you were not suffering so much. Have you ever seen a neurologist? Can you tell me what's been done to treat your RLS so far? Sadly, too many people with RLS have had experiences similar to yours. I wish doctors were more informed about RLS and more compassionate. Here is an article about RLS treatments: https://restlesslegssyndrome.sleep-disorders.net/treatment. I hope you find something in the article you haven't tried yet. Please know we are here for you whenever you need us. I look forward to hearing more about your journey so we can offer better support. Gentle hugs. - Lori (Team Member)

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