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HOW RLS REALLY AFFECTED YOUR LIFE,

A GIRL WITH A STORY

There's a girl with a story,
That should not be ignored,
Its way too important,
It has to be told.

As a child she got tired,
Trying to make her case,
Surely she could not be the only one suffering,
In the entire human race.

She was often called a liar,
Not one to be believed,
It was sure and common knowledge,
High accolades would never be achieved.

When night time arrived,
And it was time for bed,
The fear inside her grew,
It was also now the time,
That she would mostly dread.

No-one cared enough,
To even try to understand,
The traumatic fear she felt,
Her crying and screaming, Having just the one effect,
Initiating her father's belt.

So to bed she would go,
Feeling alone and afraid,
Of the demons that tormented her,
She'd close her eyes, and pray.

Please God, come and help me,
You know I'm not being soft,
My legs are driving me crazy,
Please God, come down and cut them off,

Please God, I beg you,
Bring mum to my door,
I promise, I'll be a good girl,
My legs are beginning to ache,
They are so incredibly sore.

God answered my prayer,
But only half way,
With my mother arriving,
But only to say.

Stop being so stupid,
Stop telling your lies,
There are no ants here,
There are no creeping flies.

So the torment continued,
Increasing in strength,
With the ants on my legs,
Growing longer in length.

Each morning the same,
Having no time to eat,
Always late for the bus,
Always in trouble for making a fuss

School was a nightmare,
Every day was the same,
All the nuns were in unison,
Saying her life was a shame.

Why won't she listen,
Why can't she learn,
Her parents were contacted,
To voice their concern.

They tried to explain,
Her IQ was strong,
The lower grades she's in,
She does not belong.

No-one would listen
To anything she said,
Where she needed to be,
Was back at her home,
Asleep in her bed.

She'd kick and she'd kick,
For hours on end,
Her courage never wavering,
Her determination wouldn't bend.

Then one night it arrived,
An idea came to fro,
If she rocked herself to sleep,
Maybe her legs wouldn't know.

After months of perseverance,
She thought she had won,
Altho her legs became silent,
Sleep still refused to come.

But you can't rock forever,
As the pain it gets worse,
How’s one surposed to deal,
With this God awful curse.

The torture continued,
For 50 long years,
With the thought of insanity,
Rising high in her fears.

Then one day she was shocked,
When she overheard,
The torture she'd endured,
Was not so absurd.

RESTLESS LEGS is quite common,
It's a disease of the brain,
There's a small part in your head,
That's impossible to train.

The truth of the matter,
Is it won't let you rest,
I know that's the truth,
Because I've passed the test.

She cried at the news,
When the doctor explained,
You are not going crazy,
You will not go insane.

So now it is time,
For this girl to find peace,
With my legs under control,
My pain is finally released.
RELAXED AND HAPPY

  1. Wow. So glad you finally got your answer. I am new to this site. My doctor diagnosed RLS many years ago. I also have Fibromyalgia and Post Polio Syndrome. That may sound like a lot but at least it isn’t life threatening. At 73, that’s a great thing. I take Ropinirole. Take something for nausea if I need to take 2 which is most nights. Also take Gabapentin for Post Polio which mostly affects my legs. I believe I will learn ways to help that don’t require another med. So glad I found this site.

    1. I am so glad that you found this site too! It's a fantastic support group that's a judgment-free zone.
      Sorry for the late response, September has been a challenging month for me.

      I'm glad you have a current medication routine that is working for you.

      You can check out treatment options here https://restlesslegssyndrome.sleep-disorders.net/treatment and if you click on the menu button and select the Treatment category, there is even more information.

      I hope our site can help you😀
      🥄🦄 Ray (Team member)
      Me as a bitmoji holding a sign, judgement free zone


  2. Wow.....I need a moment to gather my thoughts because this was so incredibly powerful.


    What a beautiful way to share your story with us, thank you so much!!!!!!!!!!!!!!

    I am so sorry to hear that childhood was so rough for you. I wish I could give you a hug when you were a child and tell you that you aren't alone.

    I was around 9 or 10 when I got RLS and my mom said it was just growing pains. About 7yrs later, she developed RLS so I knew I had the disease too. None of my doctors wanted to do anything about it. It wasn't until last year when I was sent for a sleep study for a different issue, that I was officially diagnosed with RLS and began treatment.

    🥄🦄 Ray (Team member)
    me as a bitmoji offering air hugs

    1. A lot of passion went into writing this. You captured the frustration many feel. I'm so glad you finally found someone who knew about restless legs and could guide you in your treatment. Kim (Team Member)

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