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6 Years of RLS

Hi all I am 79 and have tried most things to stop my RLS which at times was very violent. My doctor prescribed Gabapentin last year but I was reluctant to take it because of the large list of side effects, last Monday it was a case of having had little sleep! I gave in and tried a low dose, after 2 days my RLS has stopped. It's early days but I am hopeful, it may not work for everyone?

  1. Hello, I'm now taking pregabalin for my RLS.
    I also have insomnia. I also take mental health medication. Everything I took for MH would make my RLS worse. If we tried something for sleep also, my legs would go crazy at night.
    I came to the conclusion with research that I have a paradoxical effect. Medications that's supposed to help me sleep works the opposite. Even benadryl. So taking the pregabalin is working, I sleep and the RL have just about completely stopped.
    I've also learned that a person with RLS needs a higher iron level. About 100 I believe. I'm having my iron/ferritin levels checked to see if this is part of it.
    Just my 2 cents

  2. Hi Lori I got "8 hours" sleep some light some deep last night!!! the doctor has advised I take just enough to keep my RLS under control, so 1 in the morning 1 in the afternoon a 2 about 20.30, this may change so I am in charge of my dosage 😀
    Kindest Regards,
    John.

  3. Hi . I am thrilled for you that Gabapentin has helped! It doesn't work for everyone, but it's always worth a try. Sometimes, it can be effective in combination with other medications. I hope it continues to be effective for you and that you experience no serious side effects. Thanks for sharing what helps. Warmly, Lori (Team Member)

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