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Thanks for the blanket idea, I’ll check that out. I started Horizant tonight, ok rls help but not enough for me to fall asleep. I will kelp you posted.
I hope the night went well and that you got at least some relief. - Lori (Team Member)
Hello, I’m Kent. Starting in 2021 I suffered from low issue rls for about 3 years as a side effect of Seroquel. Over the past 2 years it has gotten progressively worse. I tried gabb, pre gab with no results. In July I went to a recommended Nuerologist, he tried 3 different drugs and after 4 months decided to stop one I was taking that night then taper off the other. I’m waiting on Horizant as a Hail Mary. This is my first night with no Ropinole and it’s beyond miserable. I’m pacing, scared and very anxious. I’m looking for suggestions for more extreme cases of rls. Mine is my whole body, neck and head. I experienced awakening from a light sleep to bright lights while jerking into a standing posture. I’m on the sofa or in my man cave, both of which suck compared to my bed & Fiancee.
Welcome to the community, Kent! My heart goes out to you. I can understand why you are so miserable. Have you tried a full-bed grouding mat? I have no experience with them and I am not a medical expert, but many people in this community swear by them. Here is a link to one on Amazon in case you are unfamiliar with them: https://a.co/d/09OlZlXd. You'll find more information in this article about home remedies and devices that might help: https://restlesslegssyndrome.sleep-disorders.net/treatment. I hope this helps and that Horizant proves to be the Hail Mary you're hoping for. Any idea how long you have to wait to begin taking it?
Please keep us posted and know that we are here for you.
Best wishes.
Lori (Team Member)
@CommunityMember9c345a
We're glad you joined us. Welcome! Warmly, Lori (Team Member) Hi and welcome,
, and ! We're happy you found our community. Wishing you the best. - Lori (Team Member)
