Do you find it difficult to talk to your doctor about your RLS?...Have you ever had difficulty describing your symptoms? Have you ever had a doctor or other clinician not understand? On the flipside, have you found a healthcare provider who is...Reactions0reactionsComments7 repliesHealthcare TeamAwarenessTreatment
RLS or ADHD?...Restless legs syndrome (RLS) is something that I have had since about age 5. It has affected my life in more ways than I can begin to put into words...Reactions0reactionsComments0 comments
RLS...Neurologist stopped my pramipexole. Started 75 mg pregabalin and.5mg HCLRopinirole. Both before bed. My symptoms were worse. Slept a total of 4 hrs over last two nights. It's Saturdawhich means...Reactions0reactionsComments8 repliesCoping
RLS in the Workplace...I have just started a new job a couple of days a week. It’s pretty exciting stuff. I’m now a part-time medical receptionist at a podiatry practice. And it turns...Reactions0reactionsComments0 comments
RLS Roulette: 600 Miles and 4 Hours of Sleep...Last month I experienced the worst journey I have ever had the misfortune to be part of since my battle with RLS commenced. Starting at 12 AM midnight, the decision...Reactions0reactionsComments0 comments
"What Are You Doing?": When Masking My Symptoms Doesn't Work...Most of the time I am a pretty chill person — even when it comes to pretty aggravating symptoms of chronic illness. I have been called "stoic" in the face...Reactions0reactionsComments0 comments
Timing Is Key With My RLS Medications...My mom has Crohn’s disease very severely and would often end up in the hospital as a result. I remember there was one time when one of the legacy nurses...Reactions0reactionsComments0 comments
RLS: The Beginning of an End?...Content Note: This article discusses suicide. If you or a loved one are experiencing suicidal thoughts, there are resources available for support, including the National Suicide Prevention Lifeline (1-800-273-8255) and...Reactions0reactionsComments0 comments
What Does Augmentation Feel Like?...Having restless legs syndrome (RLS) is no fun, folks. No fun at all. It’s like a mass of the world’s fastest beetles has started swarming down your legs. Just below...Reactions0reactionsComments0 comments
The 2024 Social Health Awards Program...Editorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards program! The Social Health Awards is an awards...Reactions0reactionsComments0 comments
Can't Sleep? Just Get Out of Bed for a Bit...This is one of the oldest tricks I used to do for chronic insomnia and "painsomnia" (insomnia due to chronic pain). And I still do it now: If I lay...Reactions0reactionsComments3 comments
Spinning Away for a Sleep...The great exercise debate keeps rumbling on when it comes to any invisible illness, not just RLS. We've heard people say that you can tire your legs out simply by...Reactions0reactionsComments0 comments
The Allergy and Antihistamine Trigger...When I had COVID in February 2022, it messed up my well-managed asthma even though I had 3 vaccine shots. Thankfully, I did have those shots and I didn’t get...Reactions0reactionsComments0 comments
RLS...I started having RLS about 20 years ago. My medicine worked fine for most of the time until I had a bunch of surgeries. This last year, my RLS has...Reactions0reactionsComments1 replies
Getting to know you...Getting to know all about you🎻🎶 (I like inserting pop culture into things I say/write.) This thread is a way to get to know everyone in our community a little...Reactions0reactionsComments0 repliesFriends & Family
Guidelines for Living With RLS Are a Bit of a Challenge for Me...As with every disease, there are guidelines, tips, and instructions for living with and managing a disease, and RLS is no exception. For someone with multiple diseases (multimorbidity), this can...Reactions0reactionsComments0 comments
A Day in the Life of an RLS Patient...Most times I don't know when my day starts or when it ends. I could go to sleep as early as 6 PM, and at 1 AM my RLS has...Reactions0reactionsComments0 comments
How a Long Road Trip and a Horrible Bed Was an RLS Nightmare...Last year my husband and I needed to travel out of town for a specialist appointment, and because of how far away it was, it required spending 2 nights away...Reactions0reactionsComments0 comments
Sit awhile and chat....Greetings and welcome.😁 This thread is for people to share how they are doing and it doesn't have to be related to RLS. Think of this as a form of...Reactions0reactionsComments5 repliesCopingMental HealthTips & Advice
The Walking Tired...I have recently been lucky enough to relocate to the most beautiful part of the country. Wide, open, majestic spaces, green as far as the eye can see, sometimes even...Reactions0reactionsComments0 comments
