tapering off of Pramipaxole and taking PregabalinHi Everyone, I am really suffering,, I have gone from .25 of prami to .125 pretty successfully but stuck at this point. My doc added pregablin -started at .50 and...Reactions0reactionsComments5 repliesAugmentationCopingDepression
CrazyHi, I have just found this group😬 I’m really struggling at the moment, the symptoms are terrible and have been for months. I have lived with RLS for 40 yrs...Reactions0reactionsComments2 repliesTreatmentCoping
24 Plus hours of RLS Episodes What is the longest any of you have suffered an RLS episode at one time? My longest has been 28 hours. The last 6 weeks have been beyond horrendous for...Reactions0reactionsComments2 repliesCopingDepressionInsomnia
RLS DICTATES MY LIFEhello I'm 52 RLS is my shadow it dictates my world ,this is really hard to write as I don't know the words to explain , I have the inherent...Reactions0reactionsComments6 repliesCopingTreatment
JohnnyI've had RLS for years and been on medication which however doesn't prevent flare ups, but helps keep it under control. I also believe that sugar is a trigger to...Reactions0reactionsComments3 repliesTreatmentAlternative TreatmentsCoping
50yrs a suffererI am 80 and I’ve had RLS for so many years and I suffer every minute with my legs simmering and then they boil over at night.My arms suffer to...Reactions0reactionsComments1 repliesCopingTreatment
Getting enough sleep - any advice? Stuck with to little sleep most of the timeI developed restless legs syndrome rather suddenly (not sure how common that is) in the middle of lockdown (I think the doctor was thrilled to deal with something other that...Reactions0reactionsComments6 repliesCopingSleep HygieneAugmentation
RLSRLS The best advice I can give is to talk to a Sleep Specialist. Mine has been helping me. After getting off Pramipexil my symptoms have gotten worse....Reactions0reactionsComments1 repliesCoping
The lack of information is the worst partI've had RLS since I was very young, it's genetic in both parents and I've been Dealing with it over 30 years now. I am so absolutely and completely fed...Reactions0reactionsComments1 repliesDepressionCopingInsomnia
There seems to nothing anybody can say to do when R.L.S starts up.I try very hard to walk a bit,can’t walk outside cos I might fall over,I just crumble in a ball in pain,but you feel as if you have to do...Reactions0reactionsComments13 repliesSymptomsCoping